Originally posted on the Sharon Leigh Ovarian Cancer Foundation website.
Why I created this foundation and website is relatively simple to put into words, the real issue is not so simple. I want to help save women's lives through education...
That sounds uncomplicated with a very big exception... it's not!
I have found that reeducating women is not that easy. We still think that our doctors are infallible, we think what he or she says is gold. After all they are the educated ones with medical degrees.
There have been times when women have approached me with this comment:
"Why didn't I listen to you?"
There is not a lot you can say when the damage is done, ovarian cancer has hit the unexpected target, and the fight for life has begun. My personal fight began when my sister died from Ovarian cancer, then I was diagnosed with the same cancer. I fortunately had listened when my sister advised me to get three tests she had not heard of. I did as she suggested. When I was diagnosed my cancer was in Stage 1. It is very rare to find ovarian cancer in the earliest of stages.
Judy advised me to get three specific tests which I had never heard of.
I followed her advice about early ovarian cancer detection for eight years. For eight years I was tested and was found to be cancer free. Until one day in April of 2004, my gynecologist said he saw something through a pelvic ultrasound, during my ovarian cancer detection checkup, on my right ovary and wanted to get a better look. I was diagnosed with 1st. Stage Ovarian cancer.
This type of a discovery is almost unheard of as ovarian cancer is usually found in the 3rd. Or 4th stage (114).
My sister died from this terrible disease, it was because of her warnings that I am alive today to tell my story , to fight for early detection and to raise funds for the research needed to save the lives of women all over the world. I do not believe that we women should be given a death sentence because of a lack of the ability to detect ovarian cancer in the first stages.
There have been so many breakthrough’s with early detection of Breast cancer that I feel we are close but are still struggling to find that one crucial test/biomarker.
In America in the year 2009, 21,500 women were diagnosed with Ovarian cancer 14,600 that’s 75% of the women died.
The tests you should be asking for are these:
1. Pelvic exam
2. Pelvic ultra sound
3. CA 125 blood test
Never get these test alone always these three tests together. False readings do occur.
Side note: ask your doctor what the reading is on the CA 125, don't be left in the dark regarding the number this will keep you advised on your health. Anything over 35 is dangerous. This alone can be a false reading, that's why you have to be aware and knowledgeable.
Our foundation continues to grow, we have had three successful golf tournaments raising approximately $140,000. (Note: total life time amount raised about $200,000) We have scheduled a Fashion/Luncheon soon with guest speakers, again with the purpose of education. Our goal is to have two to three of these luncheons per year along with the golf tournament.
Blessings,
Sharon Leigh
That's putting it mildly, can anyone be inspired when they hear the words "Your cancer is back?" I suspected it just didn't want to hear it.
It was just last March 2016 when I finished chemotherapy and radiation treatments or the so called "therapy treatments". I guess that wording is designed to sound more like physical therapy and when you're finished you'll look and feel much better. We all know that's a joke.
It takes months to feel and look better, it was once said to me after losing so much weight that I was model thin. She was being very sweet, I was gaunt looking and very weak.
I joined a gym, hired a personal trainer whom I admired, then in a conversation discovered he lost his wife to Ovarian cancer. Another designed appointment by our God, this man knew my pain and suffering, his work-out program was perfectly outlined for me based on my strength and ability.
I became strong again, we focused on my upcoming ski trip to Whistler Canada, I've never been to Canada, I'm looking forward to this trip.
A couple of weeks ago the blood test CA125 indicated a rise in number, I visited my oncologist, shared my concerns with him and then was told what I have always been told: the numbers were not in the so called zone of numbers. I'm not criticizing my Doctor, I feel he is very qualified, they are all stuck in the zone of the CA125 number of 35!! This number has never been accurate for me.
He arranged for a second blood test in two weeks, then agreed there was activity that I should contact my Primary specialist at Cedars Sinai in Los Angeles. Which I did.
Cedars Sinai is a great hospital, I don't think I can find enough words of praise for them. My Doctor is one of the most compassionate women I've known.
Early in the morning I had the discomfort of the dreaded Pet Scan, my appointment with the Doctor wasn't until that afternoon, I have a wonderful friend by the name of Mary Poppen (she receives lots of comments on what a good friend she is). Mary has been with me each time I've received the worst news, I try to keep my family out of the initial shock as my older sister is very emotional, we have already lost our other sister to this disease. This puts Mary on a spot as she is good friends with my sister.
So getting back to the wait; Mary and I met for lunch after she finally found the restaurant I was in - Cedars is a huge center. I was starving, fasting isn't my strong suit, the Asian salad was delicious.
There I sat on the exam table waiting for my Doctor, she hugs me then sat down and asked how I was, I answered "I'll be fine if you tell me the cancer is not back."
That didn't happen, it's back in several places, small tumors but still cancer. Neck, lymph nodes,tThyroid and stomach. A lot to absorb.
Treatment options - chemotherapy was first choice. No to that! I can't do that again. I chose radiation and immune therapy. With a lot of prayer added into the treatments. She did say the tumors were very small but they are there, this is my choice for the fight.
I have a lot to accomplish, I'm still going skiing, then in May I'll be watching my granddaughter graduate from high school. I'm very proud of my two granddaughters as one is in Cal-Poly and this one who is graduating will be attending Boise state. I have bragging rights.
Life moves on, sickness attacks, whatever trials we go through Jesus is always with us, we have His promise that He will never leave us.
Regardless of how difficult the journey is. Stay strong, believe in Him, King David never let go of His God throughout Saul's 11 year war against him.
In Jesus,
Sharon Leigh
Maybe sweet is not the right adjective, it works for me.
The next day I signed up with a new fitness center and a personal trainer, I was determined o get back in shape, my goal was a snow skiing trip and the last thing I wanted to happen was to fall and break something, even worse I didn't want my friend to think I couldn't keep up with her. Pride is terrible!!
I'm sure she would have understood. Oh well, I did fall once, pretty good considering what I had gone through for most of the year.
Our Christmas was wonderful, my family gets larger each year. Granddaughters seem to continually get pregnant. It causes me to think, "WOW " I'm getting old.
2016
I felt the need to take trips, just to get out of that house I had been a virtual prisoner in. On my first trip my daughter Sheryll and I visited her dad in Parker, Arizona, a great week of water skiing.Sheryll and I are very close, she stayed with me during the entire time I was fighting my battles with cancer. We have a lot of fun together. Sheryll along with my granddaughter and myself went to Cabo San Lucas this year. This was probably the best trip I've had there in all of the years I've owned my condo. I zip lined and loved it.
Next trip was back to Parker with relatives for more water skiing. Again lots of fun, this time instead of skiing we rode on Jet skis. I think it's my new passion. With that said I did buy one ??.
I did step out when the opportunity arose to run for a seat on our City Council, I filed all of the paperwork, built my Facebook, prepared my web site, all of the necessary steps I would have to complete for the big run, then based on numbers I was receiving from blood tests I felt the pressure of a lengthy campaign run would not be beneficial to my healing, too much stress. So I reluctantly backed out of the race, when I sent my notice to all the necessary parties, I was told by the Mayor, I had been in first place to win. Quite the compliment!
Any planning on future events with my foundation were put on hold for awhile. There's always next year.
We are now headed into the end of the year 2016. On October 31st. I received a phone call from Sheryll which I could hardly understand, when I finally did get a grip on what she was trying to tell me the news was devastating, My grandson Dalton, and Sheryll's only son was found dead. She was inconsolable, the details are horrible I won't go into them, They live in Hawaii, I'm with her now, we are leaving for California on the 10th of November for another memorial service and some time away from here.
I'll end here with this thought for all of us. Show your children how much you love them always, we have no idea what our future holds. Trust in God, He knows our hearts, the extent of His Love we will never understand while we are here on earth, if we have to face what Sheryll has had to go through, remember the pain goes away the memories never leave, the Sun will rise again tomorrow.
In Jesus,
Sharon Leigh
What to do with my life after latest bout with ovarian cancer stage III?
A lot of thought goes into this, I'm sure it's the same for you. I ask myself repeatedly why me? Why am I still here? What do I do with the rest of my life? Why is it that I ask why? Maybe because I lost my beloved sister to ovarian cancer and I'm still here. I felt she had so much to offer the world and what did I have to offer? (terrible personal criticism). Why do we have to be so hard on ourselves!I have reached a couple of disappointing times that I really have to get over, it's not good to keep looking back. Forward is the only way. I believe that my God has other directions for me since He knows I love serving Him.
I think what has hurt me is in the last 10 year, through the grace of God, I started two international business's. Both of them were very successful, until that second diagnosis of cancer. This last round of treatments almost killed me. I was compelled to turn over both enterprises allowing others to take over the reins. The results were disastrous, businesses cannot be run properly with a hostile board of directors. (I'm sharing way too much).
I am strong though, I'm a tough fighter, I don't give up easily, if God is for us who can be against us! I love that scripture. Although I still feel ravaged by this cancer the results are good, but because I am a woman, I wish my skin would've held up better. Lol
I'm enjoying my friends, entertaining, I've taken several trips this year with two more coming later this year. Getting more involved in politics, which I find interesting. My goal is to continue on with fundraising directed at research for ovarian cancer.
Most importantly I want to teach and speak on the wonders of our Lord Jesus Christ. I especially love traveling to share with women. It seems everything I do is always focused on women. I feel we women respond with our hearts a lot faster than men.
Keep me in prayer please, I pray for beautiful blessings on you all.
In Jesus
Sharon Leigh
Driving into Los Angeles is always a nightmare with bumper to bumper traffic, this alone wears on ones nerves, then once again I found myself lost in L.A. It always adds to the downward drop of my nervous system and the rise of my blood pressure if I hadn't been so fearful of the outcome I'm sure my day would have started out much better.
But it was my life I have been fighting for and the battle had taken a year. The outcome would determine for me if I would give up or continue on. I had already decided not to continue the battle, after the excruciating round of chemotherapy then hearing the cancer was still there I was devastated. It seemed this ugly invasion in my body was winning and I was losing. Cancer had attacked my body three times by now, for me it seemed the time to say I'm through.
Radiation was the next logical step so I was off on a new venture. This was a first for me, 28 days of treatments, five days a week, wasn't bad at all. I was very anxious to end all treatments and understandably so. My life had become doctors appointments, blood tests, pet scans, shots, exams along with blood transfusions. Ugh!
Preparation for a pet scan takes about one and a half hours, the scan itself is 30 minutes. Then you wait...
Fortunately Cedars -Sinai hospital is so sophisticated your results are almost immediate, I saw my Doctor that afternoon, my first reaction was to try and read her expression when she entered the exam room, Dr. Walsh is pretty crafty, I couldn't read her face, immediately though she said "Your cancer is gone". When you develop a relationship with your doctor they get just as excited as you are regarding the outcome. Dr. Walsh commented she could hardly wait to give me the news, she then hugged me twice. I'm very blessed to have her as my surgeon and oncologist.
My God brought me through yet another trying time in my life, He's there in the darkest of times when it seems you have been abandoned, King David felt that way in his battles, he cried out "Arise oh Lord " deliver me. Our God is faithful He will deliver you, trust in Him for your health and salvation.
I'm off to Cabo San Lucas for some much needed rest, my daughter, and granddaughter are meeting me there. I'm so blessed to have children and grandchildren who love me and pray for me.
In Jesus
Sharon Leigh
Sharon Leigh
It has been about a week since my surgery and I am still in shock with everything that has happened since that first visit to the doctor… but especially at the miracles Dr. O’Hanlan made happen! I see such a huge difference in my stomach now that all the tumors are removed and although I don’t know the severity of my diagnosis yet, I am feeling so much better. Thank you so much to everyone who commented and left encouraging words. Reading all of your personal stories and battles with cancer has reminded me I’m not alone, that there is hope, and to stay strong even as this journey begins for me.
The fear I have has not gone away, due to so many unanswered questions, but reading and talking to people I can relate to really has helped. Although everyone’s support has made my outlook on this situation so much brighter, I still cannot believe this is my life…
It’s crazy to me to think that three short weeks ago I was living my life just like any other teenage girl and now I am here desperately waiting for results to tell me how bad my CANCER is. It seems so unreal. I remember when I first heard the doctor say the word “Cancer” in the same sentence as my name. My life flashed before my eyes and I did not know what to do next. I realize now that ignoring it and pretending this is all a dream that I will soon wake up from is so much easier than facing the truth, but I understand that I do have to come to terms with this to fight it. Often times I find myself wondering why this had to happen to me and why my family was chosen to go through this, but at the same time I am happy It was me who was chosen to go into this war because I could not bare to see one of my siblings or friends go through all of this. I am staying positive and I am keeping my smile on my face, but it is still so hard to sit here showered with flowers and “Get well soon” cards knowing I am fighting a battle that so many people haven’t been able to win, and that scares me. It feels so good to get all this love, but breaks my heart that cancer is the reason why.
That might be an unachievable goal, my family thinks I'm very negative, I feel I'm more of a realist. It's tough dealing with cancer three times and believe it's gone for good.
That's being realistic.
I'm setting up my appointment for a Pet scan, I'm being somewhat of a coward as I don't want to hear anything but this: "It's Gone".
Since I have been feeling so well I've started upgrading my house, first a new garage door then new flooring in one of my bathrooms. One could consider this a downside to feeling better because now I'm spending money. There is nothing wrong with my garage door or the flooring in the bathroom.
Why am I making these changes? Because it makes me feel good. We cancer patients deserve feeling better after the nightmare we've been through. That's my opinion anyway. Our skiing trip is coming up soon I was beginning to get worried that the snow pack would be more of a block of ice. Praise God the snow is coming back. Yea !!
Keep me in your prayers as I don't want to come back with a broken clavicle, that has already happened on another ski trip.
In Jesus,
Sharon Leigh
On that same day I canceled my membership to my gym and signed on with a another. I explained my health issues then asked for a personal trainer who would listen, and most of all, hear what my goals are. I'm planning on a ski trip in March, probably seems risky, well let's face it, it is risky, with compromised bone marrow and being very weak after 10 months of treatments. My family is a little against me going. Oh well I'm going anyway.
Getting back to my personal trainer, I couldn't be happier, he served in the Marines. That in itself works for me as we are a family of Marines going back to WW2. Ron is his name, Ron has his Masters in Physical education, a Bachelors in Social Science and he taught grammar school for 33 years. Very qualified for me plus he's my age. He listens then designs my workout, I already feel better and am somewhat surprised that my body responds as if I haven't missed all of this time. Yea!!
Of course the exhaustion kicks in and then it's time to lay on the couch. Recuperation takes time and I'm impatient, I'm also not in a hurry to find out what the next Pet Scan will show, I'm just wanting to enjoy the moment. That's my story for now.
Many blessings In Jesus,
Sharon Leigh
A new day, a new adventure. Radiation... and thought I was already radiant:))
As I go through my second adventure with Ovarian Cancer first I dealt with the chemotherapy... now radiation. I've had nine treatments with more to go. It has been really easy, 10 minutes on the table and then you're done; hard to believe anything can be so precise. In the first appointment they explain everything to you, that is, the size of the tumor, how many treatments you will receive, how this can affect your body, and then you're ready for the tattoos they use to know exactly where to direct the rays.
The first seven treatments were easy, then after the eight I became very sick with an extremely nauseous stomach accompanied by exhaustion, the only time I was able to get out of bed was when I ran to the bathroom.
Now I'm dependent on anti-nausea medication, hoping this will all end soon. We who suffer with this type of disease and treatments know what an ongoing nightmare we live in, sometimes optimism is hard to find.
I'm not really a negative person I just want my life back, there's so much to do yet. I'm already planning the next Fashion/Seminar luncheon our foundation has. There will be so much to share with our guests, Education is key to our health.
I'll have a lot to talk about.
Blessings,
Sharon Leigh
My front and back yard decorations used to compete with Disneyland at Christmas. I loved it! Inside was the same with homemade decorations Mom made, a beautiful flocked tree, the scent of cinnamon and apple spice permeating from the kitchen.
This year has now changed my entire thinking, I want to celebrate life, I want to celebrate my Savior's birthday. What changed? It started with the thought of dying from the ongoing fight with ovarian cancer, my heart was crying out why wasn't this nightmare over with yet? Eight months of this for me was enough I felt. After all the stage of OC was a one, well I recently was told the stage is three not one.
No more chemotherapy Yea! That alone almost killed me. it's on to radiation, I realized my conversation and deep feelings were very negative, I was not going to survive, " Prepare the Trust," get the will ready, make sure my kids knew my plans for the memorial service. It was getting very dark here in my world.
Much too dark for me, I'm normally a very up happy person, why would I let this destroy me? Satan loves to attack us in that manner, keep us down convince us there's no hope. "Wrong"
Our hope is in Jesus, He is the reason for the Season. Now my attitude has changed, I temporarily forgot, being so caught up with the latest reports.
The front yard is now lit up with trees, Angels, gifts and of course reindeer. The snow flocked tree is standing watch over my living room, decorations are being taken out of their dusting boxes.
I want to live again being thankful for what the Lord has given me, Christmas is such a special time. Family together again, lots of noise in the house, way too many dishes in the sink. How I love it!
Merry Christmas in Jesus
Sharon
About 15 years ago we visited Arlington national cemetery, seeing first hand the graves of our soldiers who died to give us our freedom, it was an emotional experience. We also discovered that not only current burials are there but Civil War burials too, with one tomb reading "Unknown Soldiers."
The home on which the cemetery grounds are located belonged to Robert E. Lee, he became known as a traitor, the house and property were taken away from him.
I see a kindred relationship in this history with our own ongoing battle with OC (ovarian cancer).
General Lee along with today's leaders fought for their lives every time they went into battle, as we do when going through chemotherapy and surgery.
There are days when we are confident we are winning and others when we can't see the victory ahead of us.
We are like the suffragette women "Strong ! Willing to keep up the fight, confident we will persevere."
In comparisons with other wars and battles some of us won't walk away as winners, we won't become president of the United States of America, we will though be rewarded with .... "The Bronze Metal" for meritorious service in a combat zone.
May God bless you and God bless America.
Sharon Leigh Rude
Dear Diary,
I don't really keep a diary just thought I would start writing as if I did, silly huh?
I've been trying to write about my latest walk (tired of the word journey) with ovarian cancer, I find it very difficult.
I had hoped this would have come to an end by now only it hasn't. The original plan was surgery then six treatments of chemotherapy. Well, that has now changed, I'm trying to keep my head up and have a "this to will pass" attitude. Not so easy at this moment.
More surgery, more chemotherapy!! I'm having problems with platelets, blood counts and sodium counts all being too low for the so called final treatment of the original six. I'm now hearing there is one tumor which has shrunk considerably and very weak, without getting this sixth treatment my fears are it's going to start gaining strength. I keep asking myself how can stage one OC have so many problems, I was in stage one nine years ago, I didn't have any problems like this.
I'm really sharing my heart on this blog, which is unusual for me. Everyone has plans and dreams, we all know life gets put on hold. My plan was selling my house and moving to the Colorado River, I have bought a house there looks like I'll have to back out of the sale.
I'm feeling brokenhearted and very sorry for myself. But how pathetic can I be? I'm still here and there is hope. My King is still on the Throne with Him all things are possible.
Sincerely,
Sharon
This month, strangely enough, is when I lost my sister Judy to ovarian cancer 15 years ago. She had been fighting for five years, that's a total of 20 years of non-recognition.
Awareness and information on early detection was not publicly available at that time. It was her Gynecologist who told her about the three tests that would have helped in an early detection, she passed this information on to me. Four years after she passed away, and based on her input, my ovarian cancer was found in the first stage.
Now after nine years I have a recurrence of the same disease, again in the first stage. It seems this disease just doesn't want to go away.
The really good news is that women are living longer because of research. As far as I'm concerned we are also living longer because of the persistence of women. We are a strong breed! Women are not ready to roll over with the attitude of 'oh well', we are fighters. I applaud all women who get out there and organize a walk, who bring in community awareness, 5-k runs, golf tournaments and any fund-raiser they can think of.
It's these women we should be supporting, believe me it takes a lot of determination, work and support from friends and committee members to put on a golf tournament the way our foundation has. We have raised over $200,000 in the last four years. That's pretty good considering we live in a small county.
If you have personally experienced the effects of Ovarian Cancer, either for yourself or through a family member, you can speak to local service clubs (they are always open to guest speakers). Let's just get the word out. You would be surprised at the lack of information women have.
You can be that woman who has the ability to help save a life! Speaking at support groups is great also.
Life was yours for the asking, apply for a credit card, join the service there was no limit, no more need for permission from mom and dad, except if you still lived at home, that was always a game changer. I still lived there, I was happy at home. My two older sisters had chosen to marry young, clearly not my choice, my brother had joined the Marines, my younger sister was still in school.
My dad had made a promise to his daughters in hopes they would rethink marrying young, his promise was he would buy them a car for their 18th. birthday if they would not get married. Neither one received the car. My thoughts were I would take a car any day over getting married that young. I'm not against marriage I just think one should wait awhile before making such a life-changing commitment. I got my car !
I had a dream of my future which didn't include marriage, I can look back now at the clear facts; I was way ahead of my time. My goal, which I didn't share with anyone, was to be an undercover narcotics agent. I was going to infiltrate the drug life by supposedly becoming one of them then one by one start the arrests, bring in the bad guys. Sounded exciting to me and very worthwhile. My future as a police officer never happened.
I was born and raised in Compton Ca. Compton at that time was a beautiful city and very safe. The local police agency was not open to female officers, it was a dream that didn't happen.
I moved on to follow in my sisters footsteps: Beauty College. It didn't thrill me. Doors did open which I didn't expect for example the film industry, now that was interesting. I worked with the best actors and made a lot of money. I have very fond memories and pictures. I loved it.
This was at a time in my life when I had been married and divorced. I met a man while attending a barbecue, who later became my husband, (I think I mentioned Ken in another blog). Ken was a Chief on the California Highway Patrol. I guess if I couldn't be a police officer the next best choice was to marry one. In my case I married up. A Chief is the highest level you can promote to. Our life together was new and wonderful.
The next phase of my life: Cancer. Now instead of my future plans, as a once young woman I find myself thinking of a trust fund, have I fairly divided my assets? which one of my grandkids should I leave my jewelry to? ( don't get me wrong I prayerfully plan on being here for awhile.) I'm a realist though, these issues should be addressed. Let's face it though, it was a lot more fun planning your future than planning your passing.
Have you been in the unpleasant position of listening to women talk incessantly about what their doctors have to say. I deplore these conversations, we are here we have a future, God has not chosen to take us home yet. Take that cruise, you've always wanted to. Visit places you've dreamed of. Don't shrug off telling your friends and family how much you love them.
Life is priceless enjoy every minute of it, as soon as these chemotherapy treatments are over I plan on resuming my position as president of our foundation. I have several thoughts on what I consider a fun way to raise money for ovarian cancer research.
At this moment I plan on a trip to the Colorado river with my daughter. I'm looking forward to that. I feel I need to get away and start enjoying life again.
See you soon in the next letter.
In Jesus,
Sharon Leigh
- Road Trip
- What a Difference a Day Makes
- Amgen Tour 2015
- YOU ARE ON THE PATH of My choosing
- March 30, 2015 - A day I didn't expect...
- How Do I Talk to a Cancer Patient?
- Teal Magnolia Fashion Show - Sold Out Success
- Cristina Martins Sinco: My Mom
- Another wonderful thank you from Run for Her
- Thank you letter from Run for Her
- Grant from PG&E
- Fashion Show in Oceano, California
- 684 Women A Day
- 10 Genes
- Julie
- Her Name is Emma
- Victim
- One Man's Story
- Will Chemo Effect Your Mental Capabilities?
- I have a friend named Connie
- How Do Our Children Handle Mom's Cancer?
- Stellar people of 2013
- Guest post - Karolyn Wagatsuma
- A Leap of Faith